My family and I will be at the Epilepsy Foundation's DC 5k Walk on Saturday March 27, 2010...
My wife and I will be wearing our ZS shirts and will be there at 830 am and then doing the walk if any of you would like to join in or come by and see all the healthcare bill protesters... I mean, support the EFA's work to find a definitive cure.
Unlike breast cancer, as an example, epilepsy usually doesn't kill because of drugs that allow someone to "live with it". I came down with epilepsy for unknown reasons when I was 26. I don't look it and I might not have any behaviors that suggest it, but it profoundly impacts my life, my view of life, and the lives of those around me. The EFA drives about the only research going on into seizure disorders and is the only group trying to find a cure, rather than an expensive medication regimen.
It has its most profound impact on children, for whom epilepsy is devastating and heart-breaking. The walk starts around 9 am and is situated on the Mall about 0.5 miles in front of the Capital Building. There are no gates. No pre-registration. No bouncers checking for ID. If you'd like to come down, let me know and I'll keep my eye open for you.